Wednesday, March 13, 2013

Fun with Fever

Last Thursday when I came home from work, Cam announced that he felt crappy and I saw he had an elevated temperature so immediately called the cancer clinic after hours line and was told by the on-call Oncologist...  (say that out loud - on-call oncologist...hehehe) that if his fever went over 38.3 we must go to the ER.

So a couple of hours went by, and after we got 2 readings of 38.9 and then 38.6, we went in.  That was around 7:30pm.  At 11:30ish, they admitted him overnight and began administering IV antiobiotics every 6 hours.  His neutro counts were at 0.4 which is VERY low.

Here's what a visit to the ER in Surrey Memorial looks like:

Arrive at reception & check in, then wait in the waiting room for a nurse to triage you.  Go to the nurse to get your blood pressure & temperature taken & some details, then wait in the waiting room.  When your name is called, pick up your paperwork and make your way into the hospital to the Rapid Assessment Zone (ha) and hand them your paperwork - then wait in THAT waiting room (or more likely in a chair in the hallway as the chairs in the RAZ are always full).  Then you get called by the nurse to begin whatever round of tests they plan to do.  Then you wait for the results.  If you are very very lucky, there will be a bed available in one of the rooms.  If you are not as lucky, you get punted to a recliner chair in the hallway.

Anyway, that was Thursday evening, overnight and all day Friday for Cam.  ECG first, then bloodwork, then urine sample then chest Xray.  With his counts so low, they admitted him and gave the antibiotics.  The next morning, they did more bloodwork with the promise from the oncologist that if the counts looked like they were moving up, he could go home.  We didn't find that out until 4pm-ish....  so that was a long hospital stay.  The good news is that at 4:30 in the morning, they found a bed for Cam so he could get out of the hallway chair....

We were told that there was a 30% chance he would end up back in the ER the next day.  That didn't happen. HOWEVER, he did end up back in the ER last night.  Cam was feeling crappy again - a familiar crappy feeling from the week before, so we checked his temperature and it was 39.2.  There really wasn't much hesitation in going at that temperature - so at 10:30 at night, we launched on yet another ER mission. 

Amazingly, the ER was way less busy than the last 2 visits.  Everything happened basically the same except we got put in a room with a bed right away this time!  And the tests happened in different order.  But the bloodwork showed Cam's counts to be good (which we actually already knew from a bloodtest earlier in the day).  So the difference between last night and Thursday night was simply neutrophil counts.  So because the bloodwork was OK, the ER doc decided Cam shouldn't have antibiotics.

At one point, he was measured at 39.1 in the ER, and they said take Tylenol and go home.  It was very confusing.  But, we were happy to go home.  We arrived home at 3:50am.  GOOD TIMES!

But the entire ER experience last night was 10:30 - 3:30 basically....  so that's pretty good turnaround!

THEN, Cam had to go to chemo today.  We weren't sure if they wanted him coming in with fever, but they said yes and wear a mask.  So they sussed it out and decided he could go ahead and get the chemo - and then the oncologist prescribed more antibiotics. 

So, today was Cam's FINAL chemo - but it's a bit undercelebrated what with the fever and now they want to give Cam a white count booster which means more self-injections.....  And apparently they are $300 per dose!  Luckily he will only need a handful of them.

Theoretically, that should be it now.  And Lord knows, we both will be happy never to see the inside of the chemo room again.

Tuesday, February 19, 2013

Cam is Cancer Free!!!

Just returned home from the appointment with the oncologist who reported that Cam's PET scan came back 'negative' and it all looked good!!!

So, no cancer is showing which means he carries on with the original protocol and now has only 2 more treatments - one of them is tomorrow.

HAPPY HAPPY HAPPY

Spread the word!

Tuesday, January 29, 2013

Lots to report...

Yesterday was Cam's 4th of 6 chemos.  Just before Cam's 3rd chemo, he caught a cold and along with struggling through the challenge of chemo, also struggled with feeling crappy with a cold as well.  Lots of coughing & generally feeling awful.  He turned a corner around Wednesday-ish last week - but then the dread was setting in for the next upcoming chemo.

We met with the oncologist on Friday (normal pre-chemo appointment).  Everything seemed good to go.  Cam is participating in a clinical trial where they will do another PET scan after 4 treatments & use that scan to determine if treatment can proceed as planned (2 more on the current protocol), or switch to a heavier duty protocol & go for 4 more.  We, of course, are hoping for the former.

Unbeknownst to me until Monday morning, Sunday evening Cam developed a pain in his left ribcage area.  He had no trouble breathing normally but if he took a deep breath or moved in just the wrong way, it hurt a lot.

So off we went to chemo yesterday and in the pre-chemo check of symptoms, he dutifully reported that ribcage pain.  Everyone was interested in the minute details of this, and then the oncologist was called in to examine Cam.  The onc explained that it is not uncommon for cancer patients to develop blood clots and that the pain he was presenting is a symptom of a pulmonary embolism (PE for short) which is a blood clot in the lung.  Although he felt it was extremely unlikely to actually be a PE, he said he wanted Cam to proceed with chemo and then proceed to the ER afterward to investigate the pain.

The 'better safe than sorry' route in this case - so we resigned ourselves to a lengthy ER stay with the thought it would likely show nothing in the end, but in the interest of caution, away we went.

So, after an ECG, blood tests, chest x-ray and then a CT scan, at 11:20pm (yup, that's right) we were informed that Cam indeed does have a pulmonary embolism - thankfully a small one.  It is unusual for it to present with no other symptoms than the pain, but there it is.

Cam was admitted to hospital (at 12:30am) and given a bloodthinner shot, and informed that he will now need to be on bloodthinners ongoingly.  That news sucks unto itself, however, we also learned that these bloodthinners are administered via needle (as opposed to pills) and he has to give himself a shot every day from now on.  And these suckers aren't cheap either.  A 30-day supply is $1260!  Thankfully we have coverage for this.

Cam sent me home at 12:15, then I was able to pick him up this morning.  He basically had no sleep all night but seems to be doing ok now - just resting & grateful to be able to lay down without pain.

So now that the 4th chemo is done (despite the PE drama), he is now booked to have new scans to see how well the chemo has worked on the lymphoma.  So we will know around the 19th of Feb whether he continues on current protocol or switches to the harsher one.  I suspect that will be a stressful day or so....

So likely I won't make another post until we know what the frack is going on after the tests.

There's the latest!

Friday, December 21, 2012

How about an update?

 These pics to the left are Cam getting ready for surgery to remove the irritating lump in his throat.  That was Oct 24. 

Then the pathology came back to our shock and surprise indicating lymphoma.  We have since learned that lymphoma isn't really 'solved' by surgery.  So if we had some way of knowing this was lymphoma prior, there wouldn't have been any surgery - just the chemo to get rid of it.

But since we DIDN'T know, the surgery is what actually provided the opportunity to find out the irritating lump was cancer.

Of course, the surgery was very much like a tonsellectomy with all the soreness of swallowing that comes with that so Cam lost about 15 pounds right after the surgery - which he is quite pleased about.  He is now hovering around a weight he had wanted to be for awhile.  But he's not allowed to lose any more weight.

So then chemo started on Nov 26, and the 2nd chemo was Dec 17 (my birthday) and I was happy to celebrate it by going to chemo.  Anything that will get rid of the cancer is a good birthday present.


So here we are in the chemo room, rigged out to kill 4 hours.  It is far less boring than you might think.  There is always something going on - machines beeping, meds being changed, nurses in & out asking you stuff.  New chemo patients arriving to your chemo pod & getting quizzed by the nurses - and there is no privacy for that so we hear everything.  Basically, nothing has changed in the chemo room.
I spoke with another patient getting chemo for breast cancer.  Only 34!!!  With 2 young kids!!  This world is going to hell in a handbasket.... 
 
Cam has said today that he will be happy when these few months are finished.  I don't blame him, either!!  But this IS chemo week when you feel your crappiest, so I imagine he is suffering through constant 'blah' feeling and maybe hangover.  I can't tell you for SURE b/c he doesn't complain much.  So I am asking him regularly how he's doing and usually the response is 'Meh - about as good as can be expected - I didn't expect to feel like a million bucks throught his process'.
 
I am very proud of Cam and the way he is handling all of this.
 

Monday, December 17, 2012

Well, here we go again....

You may have noticed a change to the title of this blog....  YUP, add Cam to the mix who has taken the concept of sharing with his wife a little to the extreme.

Cam was diagnosed with Non Hodgkins Lymphoma on Oct 31 and started chemo on Nov 26.  Today he went through Round 2 of 6 chemotherapies.

This has been a very scary journey for me.  WAY more scary for me than going through my own cancer.  I always comforted myself with the thought that my cancer was removed when my breast was removed and all the chemo & radiation after that was 'just for good measure'.

In Cam's case, Lymphoma doesn't get dealt with by surgery.  Since the Lymph system is throughout your body, there isn't much point in cutting one area out as the cancer could be anywhere in the lymph system.  Cam's lymphoma is in his throat and colon.  While having lymphoma above and below the diaphragm is not an ideal situation (of course, I think no one dealing with cancer is really in an ideal situation), we are told that lymphoma is extremely treatable and responds well to chemotherapy.  And we also know that Cam's bone marrow is clear thanks to a very scary test he had done where they drilled a large needle into his hip & removed marrow for testing.

We are also told that studies are showing that lymphoma is NOT as responsive to radiation so they are somewhat phasing that out.  We believe the chemo is working for Cam as he already felt better with less problems swallowing after the first round.

Cam has a somewhat similar regimen of chemo to mine.  He goes every three weeks and has a couple of the same drugs I took.  He is undergoing what they call 'CHOP-R'. 

His next treatment will be Jan 7.  After 3 or 4 treatments, they will do more scans to see how well the cancer has responded to the drugs.  Then they will determine further treatment based on those scans.

Cam has been breezing through all of this with seemingly little stress and has been extremely brave.  I can somewhat relate as I recall not being all that stressed out when I was going through things.  You tend to adopt a 'gitter done' attitude.  And he suffered 'hangover' symptoms like I did the week immediately following his first chemo but then increasingly felt better.  He even ran some flyball the weekend after, but it turned out that was too much as he was pretty much wiped out for Sunday.  So these are the things we learn as we go along.

I was extremely stressed the first month.  Since my own cancer, I have been making specific efforts to reduce stress in my life as I strongly believe stress is a big contributor.  So I recognized that our situation will NOT be helped if I worry myself sick again so I have been taking steps to mitigate the stress.  Massages, counselling, relaxation CDs and deep breathing.  It is working - I am far more under control now than the first few weeks.

Of course, the week we found out that Cam's cancer was also in his colon is the same week that our pet bird got sick.  He got so sick that we had to make the decision to have him euthanized.  THIS was not something we bargained for at the same time of coming to terms with the second circumstance of cancer in our household.  So that certainly added to the stress factor.

But it's slowly getting under control with the help of friends & family.  Thanks to all who have provided pre-cooked & frozen meals!  It really does help take some of life's daily stress away not to have to worry about preparing something.

I have discussed with Cam the benefits of doing a blog.  I found my blog very cathartic and asked if he would consider one.  He is on the fence.  Of course, he is a far different personality to me, but, I really hope he will share his gift with the world - he is an excellent writer and his sense of humour should be shared with the world. 

So depending on what he decides to do about a blog of his own, I will later decide if I will continue blogging about him here.  I think I probably will, since I already mentioned my stress levels and also how helpful my blog was before.  So now that I'm feeling more stress, I think the blog would just be one more way to have an outlet....  Can't hurt, anyway, right?

So, Cam is napping right now as they drug him up with Benadryl on chemo day and I am heating the oven for a turnip carrot casserole....  mmmmm. 

That's the update!

Wednesday, August 8, 2012

2012 Run for the Cure

It's coming up on that time of year again.  To be honest, I have been very lax in this cause for someone who has been so personally affected by breast cancer.  I had my own Run for the Cure team in 2009 and flogged you all for donations back then - but since then have not done another run.

Now my friend Lily, a fellow breast cancer survivor, has formed a team (The Pink Ladies & the T-Birds) and coerced me and Cam to join it. 

Of course, any of you who might actually be reading this blog knows WAY too much of my cancer history for me to have to repeat the story....  and so I will spare you all the details.

Suffice it to say, I know have a lot more blog readers out there than followers show, and so if any of you would be so kind as to donate to my run, I would be ever-so-grateful.

Here is the link to donate directly to my page:
https://secure3.convio.net/cbcf/site/Donation2?idb=2139722125&df_id=1605&1605.donation=form1&FR_ID=1469&PROXY_ID=1735806&PROXY_TYPE=20

As far as my physical health goes - so far so good. 

Cam and I have been having a great summer, and I went to my 25-year high school reunion in July and had a blast. 

That's all, and thanks for your consideration!

Sunday, June 17, 2012

June-uary Blahs

Feels like old times - awake in the middle of the night and posting on my blog.  Hoping that spring might show up before June 21 but not holding my breath...

I'm not really sure what to talk about...  I know that I kept promising that Cam would make an entry to explain his side of the cancer experience, but I asked him several times and he always said he would but he just didn't get to it.  And now it seems kind of pointless.  And my sphere of influence is considerably diminished on it since I can't really even play my cancer card anymore....  hell - I couldn't get him to do it when I was in the throes of treatment - it seemsly highly unlikely now...  OH well...

I guess technically it's Father's Day today - since it's 3am.....  Good wishes to all dads out there. 

As far as my specific health & wellbeing, I am doing generally well.  Had a bout of vertigo and then a bad cold that many of you probably read about on Facebook when I was whining about it.

My back is not nearly as sore as it generally tends to get.  Although I have had some issues with the scars around my implant...  I think the tissues bind up and massage will help loosen them but it's painful.  Plus it's awkward to ask your massage therapist to rub your fake boob.....  (but I do it.. HA HA).  Technically, I can reach it myself - but I don't have a lot of self-discipline in many things and inflicting pain on myself isn't high on my priority list.  Of course, paying someone else to do it doesn't seem right either, however, once I've committed to spending the $$, my cheap side will come out and I'll want to get my money's worth...  HURT ME HURT ME  HAHAHAHAHA

Yes, I mentioned Facebook.  I have become a full convert.  I was a FB hater and said many many many times that FB is EVIL and I would NEVER go on FB.  Then, Cam made himself an account (not a dog one - a real one)...which got me thinking more about it.  Then some friends at a party explained how FB has privacy & security settings that let you pretty much control what people see.  So once I bought into that, I signed myself up and am now a daily FB user.  The irony here is that Cam never goes on FB.  If you ever see activity from him, it's probably me.

The upside of FB is that it's easy to keep in touch with people that you just wouldn't have time to see or talk to generally.  The downside is that you could potentially reduce your 'real person' contact based on the fact that you DO know already what's going on in someone's life.  And of course, the REAL downside is the damned games.

Before FB, I never played computer games.  The only game I ever played was Rock Band on the PS3 and Minesweeper on the computer.  Now I am addicted to Bejewelled and Solitaire Blitz and Farkle and Zuma Blitz.  I tried a few other games - casino and bingo type but was glad to see that I still hate bingo....  And the casino stuff just made no sense to me - if you're not playing for real money, what's the point?

The time I waste playing FB games is outrageous.  However, it is helpful in keeping my mind from whirling around on topics that it shouldn't be.  I think about a LOT of things - as I'm sure everyone does.  Work, leisure activities, long-term goals, my next vacation (naturally).  Typically if I go to bed when tired, I can sleep without issue - but if I am awakened in the night for some reason (like Molly whining at the door), I cannot go back to sleep.

Tonight as an example, I don't know why I woke up at midnight after sleeping for a couple of hours, but here I am still awake at 3:21am.  Of course, 10 minutes ago, I realized that I hadn't taken my nightly Tamoxifen at bed time and I wonder if my subconscious woke me up for that reason.  Tonight is the first time in almost 2 years that I have even come CLOSE to forgetting to take this pill.  I guess when you're brain registers something as life or death, it keeps it pretty high on the list of priorities.  So it's a few hours late and in this case, better late than never still applies.

I can't believe it's been 3 years since I found the lump.  Hey - I just realized, it was almost right around this time...  I think it was June 12 in 2009.  The good news is, that date doesn't really stick out for me.  I only just remembered it now and not on June 12 - that must be good, I think.

Ugh, I actually just yawned - I guess I'll try that sleep thing again and see what happens.

Last time I blogged, I said I was in a motivation stage & using my treadmill daily.  HA - that was shortlived.  I think I gained 4 pounds on my trip to Palm Springs....  I was on my way by myself in Feb, but Cam and I went there for Easter too.  We love Caliente Hot Springs Resort....  Anyway, still working on those same 10 pounds.  My last weigh-in had me within 8.5 pounds of goal, however, we went out for Mexican on Fri night and I had a full meal of leftovers for it too....  so I'm sure it's back to the 10 pounds.  CRAP!!!  maybe some decent weather would help with some motivation.....

Anyway, I'm off.  Until next time, whenever that will be - since clearly I've run out of anything even mildly interesting to say.... haha